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There are many websites with information about cancer and radiotherapy. This is a helpful round up of some of the reliable resources about radiotherapy and its side-effects that are available to support you.
This part of the website is under development. More resources will appear soon.
Here you will find useful information and resources about radiotherapy for specific tumours. There is also information relating to skin care advice during radiotherapy. This resource provides more detailed radiotherapy information to help reassure you about what will happen when you come for radiotherapy. It will also provide more information about the short and long term side-effects that you may experience.
This part of the website is under development. More resources will appear soon.
Would you consider having treatment as part of a clinical trial? Radiotherapy clinical trials are important as they help to improve quality of life following treatment, reduce the side effects of radiotherapy, and improve radiotherapy treatments for the benefit of patients.
You can search for trials on the Cancer Research Website here:
Late side-effects of radiotherapy may happen a few months or years after treatment. Sometimes, these side-effects cannot be cured, but it might be possible to manage them. This page provides information about the late-effects of radiotherapy you may experience and resources that may provide support.
This part of the website is under development. More resources will appear soon.
Here you will find links to websites that provide cancer support and information services. These websites include information on diagnosis and treatment options, as well as more information on accessing support.
This part of the website is under development. More resources will appear soon.
We would love to hear from you if you would you like to use your experience of radiotherapy to help shape our services for the benefit of future patients and their loved ones.
Our Patient Co-Production Group are currently supporting a project to develop patient information. There are other projects in the pipeline. If you are interested in joining the group as a volunteer then please get in touch.
This leaflet, published by the Society and College of Radiographers, provides patients receiving radiotherapy with up-to-date skincare guidance. The information is based on expert consensus and review of the available evidence. The information is endorsed by Breast Cancer Now.
Cancer Research UK is a Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum)website approved by the plain English campaign. Find out more about different types of radiotherapy, radiotherapy side-effects, and follow up. There is also a clinical trails database, cancer chat forum, and nurse helpline.
Macmillan is a Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum) website. This website gives information about radiotherapy and the side-effects, including the impact on sex life and fertility. It provides information in other languages and formats such as British Sign Language and easy read information.
Radiotherapy UK is a Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum) Patients and Families online hub. Learn more about your pathway through radiotherapy treatment, your treatment team, side-effects and late-effects of radiotherapy, and get helpful ideas on questions to ask so you feel empowered to understand your treatment. Browse patient stories and soak in information that has been approved by patients and clinicians, all in your own time and in the comfort of your own home.
Black Women Rising UK is the flagship programme of registered charity, The Leanne Pero Foundation, that offers culturally sensitive support, information and advice, for women of colour who have had a cancer diagnosis. We deliver a range of support services and projects that provide a platform for cancer patients, and survivors to seek help at the earlies opportunity. We strongly feel that no-one must suffer in silence of feel isolated even faced with their personal cancer journey.
However someone is experiencing breast cancer, we’re here. Whoever the person you support is, and whatever their experience of breast cancer, they can turn to us. Whether they’re dealing with a diagnosis, managing side effects, working out life during or beyond treatment – or someone they love is.
We have free services that will give them the support they need in the way they want.
Future Dreams Breast Cancer Charity believes nobody should face breast cancer alone or without hope. We offers a wide range of in-person and online services providing practical, emotional and psychological support for those diagnosed with breast cancer. No referrals needed. We also fund vital research and promote breast health awareness.
Bladder and Bowel UK provide information and support to people with bladder and bowel problems, including cancer. The website includes information about the 'Just Can't Wait' toilet card, which is supported by many retail and service organisations and gives access to toilets not usually available to the general public.
Mouth Cancer Foundation is a charity dedicated to raising awareness and support for those suffering from, or at risk of, mouth, throat and other head and neck cancers, as well as providing assistance and information on living with mouth cancer for families, friends and carers.
Salivary Gland Cancer UK is here to support those affected by, treating and researching rare Salivary Gland Cancers.
Whether you're a patient, the caregiver for a patient, a family member or a friend, we are here to support you. We provide peer support and reliable information for those affected by all the Salivary Gland Cancers.
Infopool the Prostate Cancer Resource, is a Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum) resource run by Prostate Cancer Research. it is an interactive, easy-to-use website which helps people better understand testing and diagnosis, treatment choices, living with side effects, information about clinical trials and patient stories to learn from those with real lived experience. It makes use of videos, animations, infographics and cartoon strips to support patients in navigating the complex information around prostate cancer. From choosing a treatment to managing side effects and finding a clinical trial, the infopool empowers patients to take control of their prostate cancer journey.
Thank you for your interest in The East of England Radiotherapy Network Patient Co-Production Volunteer Group and for taking the time to read this information. We hope this provides you with information about the role of a Patient Co-Production Volunteer, but please do contact us if you have any further questions.
Patient Co-Production Volunteers use their personal experience of radiotherapy services to influence current and future services. In our Network the roles include, but are not limited to, consultation on: the Network’s annual work plan, radiotherapy service configuration (what radiotherapy services are delivered where), development of patient information, and patient radiotherapy experience survey action plans. You do not need to have any other skills other than your personal experience of using radiotherapy services. We’ll give you the opportunity to let us know of any reasonable adjustments you may have that will support you to be involved, such as easy-read versions of documents.
Co-Production is ensuring that people with lived experience are included in decision making, to ensure services work well, and are fit for purpose. Services working together with people and communities means that services will be fit for purpose and tailored to the needs of the patients their families and carers. It also means that people will feel valued and heard. Using everyone’s experience and expertise, we will get to the right solutions faster and services will work better. This role will support the Network in ensuring that any person receiving radiotherapy within the East of England will be receiving the same access to a high standard of radiotherapy, with the same treatment protocols, in line with national recommendations.
Any patient or carer of someone who has had radiotherapy in one of the East of England radiotherapy departments within the last five years. The person must be over 18 years old. Training and DBS checks are required as part of the role.
Meetings will be held online during the day and in the evening. The time commitment will depend on the action plan you will be supporting, but usually this is no more than once a month, with some email correspondence in-between. Before you accept any specific role, we will advise you of the time commitments needed.
Thank you for taking the time to read this information. If you would like to apply, or have further questions, please contact Alison Bowman, the Network Project Manager.
Our website is under development. We are working on adding more resources. It's important to us that we receive your feedback about our website. Please completed the short survey by clicking the link below. Or leave us feedback on the 'contact us' form.