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INFORMATION FOR PATIENTS

RADIOTHERAPY INFORMATION AND SUPPORT

TUMOUR SPECIFIC RADIOTHERAPY INFORMATION

TUMOUR SPECIFIC RADIOTHERAPY INFORMATION

There are many websites with information about cancer and radiotherapy. This is a helpful round up of some of the reliable resources that are available about radiotherapy and radiotherapy side effects










This part of the website is under development. More resources will appear soon. 

RADIOTHERAPY INFORMATION AND SUPPORT

TUMOUR SPECIFIC RADIOTHERAPY INFORMATION

TUMOUR SPECIFIC RADIOTHERAPY INFORMATION

TUMOUR SPECIFIC RADIOTHERAPY INFORMATION

Here you will find useful   information and resources about radiotherapy for specific tumours. There is also information relating to skin care advice during radiotherapy. This resource provides more detailed radiotherapy information to help reassure you about what will happen when you come for radiotherapy. It will also provide more information about the short and long term radiotherapy side effects that you may experience.   


This part of the website is under development. More resources will appear soon. 

TUMOUR SPECIFIC RADIOTHERAPY INFORMATION

RADIOTHERAPY CLINICAL TRIALS

TUMOUR SPECIFIC RADIOTHERAPY INFORMATION

BEING ACTIVE WHEN YOU ARE LIVING WITH CANCER

Would you consider having treatment as part of a clinical trial? Radiotherapy clinical trials are important as they help to improve quality of life following treatment, reduce the side effects of radiotherapy, and improve radiotherapy treatments for the benefit of patients.


You can search for trials on the Cancer Research Website here: 

  Clinical trial search 






Watch a video about radiotherapy clinical trials

BEING ACTIVE WHEN YOU ARE LIVING WITH CANCER

BEING ACTIVE WHEN YOU ARE LIVING WITH CANCER

BEING ACTIVE WHEN YOU ARE LIVING WITH CANCER

Click here to see a toolkit specifically designed for people with cancer created by expert physiotherapists.  This online programme will help support you staying active during and after treatment.  










BEING ACTIVE WHEN YOU HAVE CANCER PROGRAMME

THE LATE EFFECTS OF RADIOTHERAPY

BEING ACTIVE WHEN YOU ARE LIVING WITH CANCER

THE LATE EFFECTS OF RADIOTHERAPY

Radiotherapy  late effects may happen a few months or years after treatment. Sometimes, these radiotherapy side effects cannot be cured, but it might be possible to manage them. This page provides information about the late effects of radiotherapy you may experience and resources that may provide support.



This part of the website is under development. More resources will appear soon.

LATE EFFECTs INFORMATION

CANCER SUPPORT AND INFORMATION

BEING ACTIVE WHEN YOU ARE LIVING WITH CANCER

THE LATE EFFECTS OF RADIOTHERAPY

Here you will find links to websites that provide cancer support and information services. These websites include information on diagnosis and treatment options, as well as more information on accessing support.






This part of the website is under development. More resources will appear soon.

Cancer support and information

JOIN OUR NETWORK PATIENT CO-PRODUCTION GROUP

JOIN OUR NETWORK PATIENT CO-PRODUCTION GROUP

JOIN OUR NETWORK PATIENT CO-PRODUCTION GROUP

We would love to hear from you if you would you like to use your experience of radiotherapy to help shape our services for the benefit of future patients and their loved ones. 


Our Patient Co-Production Group are currently supporting a project to develop patient information. There are other projects in the pipeline. If you are interested in joining the group as a volunteer then please get in touch.

Find out more about our patient co-production group

RADIOTHERAPY INFORMATION AND SUPPORT

Cancer Research UK is a Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum)website approved by the plain English campaign. Find out more about different types of radiotherapy, radiotherapy side-effects, and follow up.  There is also a clinical trails database, cancer chat forum, and nurse helpline.

 Macmillan is a Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum) website. This website gives information about radiotherapy and the side-effects, including the impact on sex life and fertility. It provides information in other languages and formats such as British Sign Language and easy read information.

The NHS website gives an overview of radiotherapy and some of the  side effects. There is also a video explaining what happens during radiotherapy.

Radiotherapy UK is a Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum) Patients and Families online hub. Learn more about your pathway through radiotherapy treatment, your treatment team, side effects and late-effects of radiotherapy, and get helpful ideas on questions to ask so you feel empowered to understand your treatment. Browse patient stories and soak in information that has been approved by patients and clinicians, all in your own time and in the comfort of your own home.  

SKIN CARE DURING RADIOTHERAPY

This leaflet, published by the Society and College of Radiographers, provides patients receiving radiotherapy with up-to-date skincare guidance. The information is based on expert consensus and review of the available evidence. The information is endorsed by Breast Cancer Now. 

Download PDF

CANCER SUPPORT AND INFORMATION

Black Women Rising UK is the flagship programme of registered charity, The Leanne Pero Foundation, that offers culturally sensitive support, information and advice, for women of colour who have had a cancer diagnosis. We deliver a range of support services and projects that provide a platform for cancer patients, and survivors to seek help at the earlies opportunity. We strongly feel that no-one must suffer in silence of feel isolated even faced with their personal cancer journey.

Maggie's is a charity that provides free expert care and support in centres across the UK and online. They provide cancer support specialist, psychologists and welfare benefits advice services. You can use the website to find services local to you.

Macmillan Cancer Support provide comprehensive cancer information and support. This website provides information about all different types of cancer, their treatments, and advice to help you manage the impact the cancer may have on your life.

CLICK TO FIND FURTHER INFORMATION AND SUPPORT

BREAST CANCER INFORMATION AND SUPPORTbOWEL CANCER INFORMATION AND SUPPORTHEAD AND NECK CANCER INFORMATION AND SUPPORTPROSTATE CANCER INFORMATION AND SUPPORT

BREAST CANCER INFORMATION AND SUPPORT

 However someone is experiencing breast cancer, we’re here. Whoever the person you support is, and whatever their experience of breast cancer, they can turn to us. Whether they’re dealing with a diagnosis, managing side effects, working out life during or beyond treatment – or someone they love is.

We have free services that will give them the support they need in the way they want. 

 Future Dreams Breast Cancer Charity believes nobody should face breast cancer alone or without hope. We offers a wide range of in-person and online services providing practical, emotional and psychological support for those diagnosed with breast cancer. No referrals needed. We also fund vital research and promote breast health awareness. 

BOWEL CANCER INFORMATION AND SUPPORT

Bladder and Bowel UK provide information and support to people with bladder and bowel problems, including cancer. The website includes information about the 'Just Can't Wait' toilet card, which is supported by many retail and service organisations and gives access to toilets not usually available to the general public. 

Bowel Cancer UK offers support for those with bowel cancer. The website provides access to information, support, podcasts and real life stories. 


HEAD AND NECK CANCER INFORMATION AND SUPPORT

Changing Faces is here for everyone with a scar, mark or condition on their face or body. We provide life-changing mental health, wellbeing and skin camouflage services. We work to transform understanding and acceptance of visible difference, and campaign to reduce prejudice and discrimination. 


 The Head and Neck Cancer Coalition is a group comprising charities, support groups, healthcare associations and key stakeholders. They are focused on research, patient and carers support, policy, clinical services awareness and education.

   Head and Neck Cancer UK are a charity set up by head & neck cancer specialists and survivors. This website provides information and support for patients experiencing cancer of the head and neck. 


Mouth Cancer Foundation is a charity dedicated to raising awareness and support for those suffering from, or at risk of, mouth, throat  and other head and neck cancers, as well as providing assistance and information on living with mouth cancer for families, friends and carers. 

Join the  Mouth Cancer Foundation online community. Patient Ambassador Karen Liesching-Schroder  hosts a closed Facebook group to support patients and carers. 

Scan the QR code or click on the image to join.

   Oracle Head and Neck Cancer UK is a charity set up by Head & Neck Cancer Specialists and Survivors. This website provides information and support for patients experiencing cancer of the head and neck. 


 Salivary Gland Cancer UK is here to support those affected by, treating and researching rare Salivary Gland Cancers. 

Whether you're a patient, the caregiver for a patient, a family member or a friend, we are here to support you.  We provide peer support and reliable information for those affected by all the Salivary Gland Cancers.   

 

The Swallows Head and Neck Cancer Support Group support all people affected by head and neck cancers, patients, caregivers, friends, or relatives. 



The Throat Cancer Foundation are a foundation that aims to raise awareness of cancers that affect the head, mouth and neck.  The website features information and support for patients, carers and loved ones.


PROSTATE CANCER INFORMATION AND SUPPORT

Infopool the Prostate Cancer Resource, is a  Patient Information Forum TICK accredited ( PIF TICK Certification | Patient Information Forum) resource run  by Prostate Cancer Research. it  is an interactive, easy-to-use website which helps people better understand testing and diagnosis, treatment choices, living with side effects, information about clinical trials and patient stories to learn from those with real lived experience. It makes use of videos, animations, infographics and cartoon strips to support patients in navigating the complex information around prostate cancer. From choosing a treatment to managing side effects and finding a clinical trial, the infopool empowers patients to take control of their prostate cancer journey. 

Prostate Cancer UK provide information about all aspects of prostate cancer. Here you'll find information informing you of your risk of developing prostate cancer, diagnosis, treatment, living with cancer, and information about the support available. 

PATIENT CO-PRODUCTION GROUP

Thank you for your interest in The East of England Radiotherapy Network Patient Co-Production Volunteer Group and for taking the time to read this information. We hope this provides you with information about the role of a Patient Co-Production Volunteer, but please do contact us if you have any further questions.

What is the role of the Patient Co-Production Volunteers?

Patient Co-Production Volunteers use their personal experience of radiotherapy services to influence current and future services. In our Network the roles include, but are not limited to, consultation on: the Network’s annual work plan, radiotherapy service configuration (what radiotherapy services are delivered where), development of patient information, and patient radiotherapy experience survey action plans. You do not need to have any other skills other than your personal experience of using radiotherapy services. We’ll give you the opportunity to let us know of any reasonable adjustments you may have that will support you to be involved, such as easy-read versions of documents.

How will this impact you and other patients?

Co-Production is ensuring that people with lived experience are included in decision making, to ensure services work well, and are fit for purpose. Services working together with people and communities means that services will be fit for purpose and tailored to the needs of the patients their families and carers. It also means that people will feel valued and heard. Using everyone’s experience and expertise, we will get to the right solutions faster and services will work better. This role will support the Network in ensuring that any person receiving radiotherapy within the East of England will be receiving the same access to a high standard of radiotherapy, with the same treatment protocols, in line with national recommendations. 

Patient volunteer eligibility

Any patient or carer of someone who has had radiotherapy in one of the East of England radiotherapy departments within the last five years. The person must be over 18 years old. Training and DBS checks are required as part of the role.  

Time commitment

Meetings will be held online during the day and in the evening. The time commitment will depend on the action plan you will be supporting, but usually this is no more than once a month, with some email correspondence in-between. Before you accept any specific role, we will advise you of the time commitments needed. 

How to apply to join or ask further questions

Thank you for taking the time to read this information. If  you would like to apply, or have further questions, please contact Alison Bowman, the Network Project Manager.

Email an enquiry

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